Next SIP Conference


The 22nd American Stickler Syndrome Conference held on July 12-14 2019 in Boston was designated as our final conference. Currently, we are working with the Marfan Foundation to join their organization and possibly share expenses for future conferences. The details are being worked out and we will post our progress as more details become available.

Note:  Updates will be printed here. So check regularly.

Update #1: The Marfan Foundation has offered us meeting space at their 2021 National Conference to be held in Chicago, July, 2021.  

Hotel & Meeting Location: 
Chicago, IL


For Hotel Reservation:

Hotel TBD

Registration Form-(Click to view and print)

Speakers & Schedule

Future Information

This is the annual meeting in America for people who have an involvement with Stickler syndrome. Please contact us with any questions or special needs.

Stickler Involved People

15 Angelina
Augusta, KS 67010