Next SIP Conference


The 22nd American Stickler Syndrome Conference held on July 12-14 2019 in Boston was designated as our final SIP conference.

In 2021 SIP joined the Marfan Foundation to share their valued resources with our members. We no longer update this website with current and new Stickler Syndrome information. However, the Marfan Foundation has invited Stickler Involved People’s members to participate in their events and activities.  Feel free to check out and participate in any interesting Marfan Foundation activities at: ( Type “Stickler Syndrome” in their search box for new information.


Hotel & Meeting Location: 


For Hotel Reservation:

Hotel TBD

Registration Form-(Click to view and print)

Speakers & Schedule

Future Information

This is the annual meeting in America for people who have an involvement with Stickler syndrome. Please contact us with any questions or special needs.

Stickler Involved People

15 Angelina
Augusta, KS 67010