Special Update: Register for this Covid-19 Vaccine webinar moderated by Dr. Francis Collins, Director of the NIH.
Saturday, February 20th, 12:00 – 12:30 PM ET
He will explain why it is critical that individuals living with chronic diseases and conditions receive the coronavirus vaccine. He will describe the scientific evidence for the safety and efficacy of the vaccine and why it is important to get vaccinated when it is your turn. Dr. Collins has been a leader in the quest to develop the vaccines, and is working hard to make sure they are widely available. This meeting is hosted by Genetic Alliance.
Register in advance for this meeting:
https://us02web.zoom.us/meeting/register/tZUvf-CurzwuHtaYtGPZmKHLvuzOnhRzXGLx
After registering, you will receive a confirmation email containing information about joining the meeting.
Please check out more related connective tissue webinars at the Marfan International E-Summit Agenda and Schedule. All starting times are Eastern Standard time zone.
Welcome
Welcome to the web site of Stickler Involved People (SIP), the U.S. support group helping those with Stickler Syndrome since 1994.
Stickler syndrome (hereditary progressive arthro-ophthalmopathy) is a connective tissue disorder, a genetic malfunction in the tissue that connects bones, eyes, and ears. This disorder is associated with problems to vision, hearing, bone and joint, facial and cleft palate.
If you are a Stickler involved person, please find out more about becoming a SIP member and subscribe to our list server to post & receive SIP member’s messages. If you are a physician, please visit our Physician’s Overview page for a quick summary of our web site.
Thank you for visiting our site and please feel free to explore and learn from the vast information posted here. Come back as often as you like.