Special Update: Free Webinar May 7, 2020 7pm EST. Dr. Rachel Kuchtey, from Vanderbilt, will address not only Marfan, but also Stickler eye issues and treatments. You must register at:
https://bit.ly/EyeWebinar_May_7_2020 (Be sure to consider your own time zone for starting time 7pm Eastern}.
Welcome to the web site of Stickler Involved People (SIP), the U.S. support group helping those with Stickler Syndrome since 1994.
Stickler syndrome (hereditary progressive arthro-ophthalmopathy) is a connective tissue disorder, a genetic malfunction in the tissue that connects bones, eyes, and ears. This disorder is associated with problems to vision, hearing, bone and joint, facial and cleft palate.
If you are a Stickler involved person, please find out more about becoming a SIP member and subscribe to our list server to post & receive SIP member’s messages. If you are a physician, please visit our Physician’s Overview page for a quick summary of our web site.
Thank you for visiting our site and please feel free to explore and learn from the vast information posted here. Come back as often as you like.