URGENT NOTICE:  2024 will be SIP’s final years of scholarship offers. The Marfan Foundation will determine the continuance of the SIP Gunnar B. Stickler Memorial Scholarship starting 2025 and forward based on finances available. 

Updates: SIP has joined the Marfan Foundation since 2021. To explore what’s new in Stickler Research and see more information, you can visit Marfan.org or go directly to our Stickler Syndrome | Causes, Signs, & Symptoms | Marfan Foundation page. Or you can enter “Stickler Syndrome” in their search box and explore and support their great foundation. (The administrator for this Stickler website only updates these pages annually for operational purposes).


Welcome to the web site of Stickler Involved People (SIP), the U.S. support group helping those with Stickler Syndrome since 1994.

Stickler syndrome (hereditary progressive arthro-ophthalmopathy) is a connective tissue disorder, a genetic malfunction in the tissue that connects bones, eyes, and ears. This disorder is associated with problems to vision, hearing, bone and joint, facial and cleft palate.

If you are a physician, please visit our Physician’s Overview page for a quick summary of our web site.

Thank you for visiting our site and please feel free to explore and learn from the vast information posted here. Come back as often as you like.


2024 Virtual Conference

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Dr. Gunnar Stickler (1925 – 2010) was a pediatrician who made significant contributions to the field of pediatrics and was the first scientist to describe the hereditary condition now named in his honor, Stickler Syndrome.  Dr. Stickler went on to co-author more than 200 scientific papers.

Read more about Dr. Stickler.

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Legal Disclaimer

All the information on this website is published in good faith and for general information purpose only. While every caution has been taken to provide the most accurate information and honest analysis, we do not make any warranties about the completeness, reliability and accuracy of this information. Any action you take upon the information on our website is strictly at your own risk and we will not be liable for any losses and damages in connection with the use of our website.

From our website, you can visit other websites by following hyperlinks to these sites. While we strive to provide only links to useful and ethical websites, we have no control over the content and nature of these sites and the links to other websites do not imply a recommendation for all the content found on these sites.

Please note that some of the articles and graphics on this website may be copyright protected and that all the trademarks are the property of their respective holders and you may download only one copy for personal use. Please be also aware that when you leave our website, other sites may have different privacy policies and terms which are beyond our control.

Stickler Involved People (SIP) is not dispensing medical advice. We encourage you to take any information you find here to your physician, who knows you and your medical conditions best (including the ways Stickler syndrome has affected you).