Updates:  The Marfan Foundation’s Virtual Annual Conference was held July 8-11, 2021. They included two session specifically about Stickler Syndrome. What’s New in Stickler Research and a support group for Stickler syndrome.  You can go to Marfan.org and search “Stickler Syndrome” for more information about Stickler syndrome on their web site.

WELCOME

Welcome to the web site of Stickler Involved People (SIP), the U.S. support group helping those with Stickler Syndrome since 1994.

Stickler syndrome (hereditary progressive arthro-ophthalmopathy) is a connective tissue disorder, a genetic malfunction in the tissue that connects bones, eyes, and ears. This disorder is associated with problems to vision, hearing, bone and joint, facial and cleft palate.

If you are a Stickler involved person, please find out more about becoming a SIP member and subscribe to our list server to post & receive SIP member’s messages. If you are a physician, please visit our Physician’s Overview page for a quick summary of our web site.

Thank you for visiting our site and please feel free to explore and learn from the vast information posted here. Come back as often as you like.

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Dr. Gunnar Stickler (1925 – 2010) was a pediatrician who made significant contributions to the field of pediatrics and was the first scientist to describe the hereditary condition now named in his honor, Stickler Syndrome.  Dr. Stickler went on to co-author more than 200 scientific papers.

Read more about Dr. Stickler.

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All the information on this website is published in good faith and for general information purpose only. While every caution has been taken to provide the most accurate information and honest analysis, we do not make any warranties about the completeness, reliability and accuracy of this information. Any action you take upon the information on our website is strictly at your own risk and we will not be liable for any losses and damages in connection with the use of our website.

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Stickler Involved People (SIP) is not dispensing medical advice. We encourage you to take any information you find here to your physician, who knows you and your medical conditions best (including the ways Stickler syndrome has affected you).