Updates: The Marfan Foundation’s Virtual Annual Conference was held July 8-11, 2021. They included two session specifically about Stickler Syndrome. What’s New in Stickler Research and a support group for Stickler syndrome. You can go to Marfan.org and search “Stickler Syndrome” for more information about Stickler syndrome on their web site.
Welcome to the web site of Stickler Involved People (SIP), the U.S. support group helping those with Stickler Syndrome since 1994.
Stickler syndrome (hereditary progressive arthro-ophthalmopathy) is a connective tissue disorder, a genetic malfunction in the tissue that connects bones, eyes, and ears. This disorder is associated with problems to vision, hearing, bone and joint, facial and cleft palate.
If you are a Stickler involved person, please find out more about becoming a SIP member and subscribe to our list server to post & receive SIP member’s messages. If you are a physician, please visit our Physician’s Overview page for a quick summary of our web site.
Thank you for visiting our site and please feel free to explore and learn from the vast information posted here. Come back as often as you like.