Special Update: Next Webinar. What Did You Say? Understanding Hearing Loss in Stickler Syndrome
Description: Learn how to detect hearing loss in children, understand how hearing loss may become more severe over time, and become informed and about treatments such as hearing aids and cochlear implants.
SPEAKER: Michael S. Cohen, MD
Harvard Medical School, Director, Pediatric Hearing Loss Clinic, Massachusetts Eye and Ear
(Be sure to consider your own time zone for starting time at 12:00 pm Eastern).
Here is the complete Marfan International E-Summit Agenda and Schedule: All starting times are Eastern Standard time zone.
Welcome to the web site of Stickler Involved People (SIP), the U.S. support group helping those with Stickler Syndrome since 1994.
Stickler syndrome (hereditary progressive arthro-ophthalmopathy) is a connective tissue disorder, a genetic malfunction in the tissue that connects bones, eyes, and ears. This disorder is associated with problems to vision, hearing, bone and joint, facial and cleft palate.
If you are a Stickler involved person, please find out more about becoming a SIP member and subscribe to our list server to post & receive SIP member’s messages. If you are a physician, please visit our Physician’s Overview page for a quick summary of our web site.
Thank you for visiting our site and please feel free to explore and learn from the vast information posted here. Come back as often as you like.