News & Updates

Stickler Involved People Newsletter December 2002

By December 10, 2002 No Comments

December 2002

Coordinator Comment

I receive tons of catalogs at this time of year. (at least, my mail carrier thinks it is tons). Every day, there are 4 or 5 new catalogs to look over. Some of them have ideas that I can use for Christmas and some of them get thrown out immediately. Some I save for future use.

I think this is the same description of ideas we get each day. Some need to be used today, some discarded imme-diately, and others saved for future use. Hopefully, these ideas do not weigh a ton.

Put one good idea to use every day. Recon-tact an old friend. Make cookies for a neighbor. Give a coworker a hug. Do a good deed each day and all days will go smoother for all of us.

Happy holidays to you and yours. We hope to see you in July at the 2003 conference.


Stickler Involved People is very proud to announce the creation of the Gunnar B Stickler Scholarship Fund. Dr and Mrs Stickler have generously donated the start-up money for a fund to provide high school seniors, who have a diagnosis of Stickler syndrome, with a four year scholarship. The committee has completed the hurtles for the IRS and has a set of criteria established. Applications will be available after January 1, 2003. Check on the website for the criteria and application or write us.

This scholarship fund is now available for your tax deductible contributions!! Please consider helping by making a donation in honor of your parents, or your child or your spouse. This is a good Christmas gift suggestion!


SIP has a great committee working very hard on the next conference. It will be July 11-13, 2003. The location has been narrowed to the San Francisco area. Make plans to join us and vacation from there. The conference brochure will be in the March newsletter.

You have heard that name in this newsletter many times. As members, you have donated over $600 to Stickler Involved People and it has not cost you a cent. Until January 31, any new person who goes through to make their online purchases will be donating $5 to SIP. There are over 400 stores on now! So, do your Christmas shopping by starting at and you will be contributing to SIP.

Stickler – The Elusive Syndrome

This book, written by Wendy Hughes, explains, in layman terms, the condition, possible medical problems, and how it can affect individuals. The approach is positive and leaves the reader with hope and skills to manage Stickler syndrome.

Wendy’s book is available for $28.50 payable to Stickler Involved People. The cost includes exchange to British pounds, shipping and handling. Send requests to: Stickler Involved People, 15 Angelina, Augusta, KS 67010


A request for an annual donation of $10 is made to help with expenses for Stickler Involved People.