Listserve Mailing List
- There is an Internet mailing list for Stickler Syndrome that allows users to communicate and share information via email. Click here for more information about joining/using our Listserv Mailing List.
- Anastasia Burton from the Shodair Children’s’ Hospital In Helena Montana let us know that Montana’s Children’s Miracle Network chose a Stickler child to make a video about. We are invited to watch the video at www.shodair.org. Then click the banner, “Meet Samantha Faulkner” to watch the video.
- Learn American Sign Language (ASL) – Learn American Sign Language Online Free (© 2006, www.Lifeprint.com. Used by permission.)
- The Social Security and Disability Resource Center website (ww.ssdrc.com) provides answers to questions concerning how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants filing for either SSD (social security disability) or SSI (supplemental security income) benefits. For the most part, the site is based on the author’s personal experience as a former disability-medicaid caseworker, and also as a former disability examiner for the social security administration.
- A Stickler Syndrome Web Site Written in French
- World Wide Stickler Syndrome Support Group Links
- The Mayo Clinic Stickler Syndrome Links
- More Stickler Syndrome Web Site Links
- WonderBaby.Org: a project funded by Perkins School for the Blind, is dedicated to helping parents of young children with vision impairments as well as children with multiple disabilities. Here you’ll find a database of articles written by other parents, as well as links to meaningful resources and ways to connect with other families.
- Related Links For More Information