Next SIP Conference


The 22nd American Stickler Syndrome Conference held on July 12-14 2019 in Boston was designated as our final conference.

Recently, SIP has joined the Marfan Foundation to share their valued resources with our members. The Marfan Foundation has invited Stickler Involved People’s members to their Virtual National Conference to be held July 8-11, 2021. They have a session about What’s New in Stickler Research and a support group for Stickler syndrome. Hope you can join – it’s free to register. Check it out and register here:  For more information, please click the link below to view the Marfan Foundation Virtual Conference Page:

Marfan Virtual Conference July 8-11, 2021

(You can visit the Marfan Foundation website at:

Hotel & Meeting Location: 


For Hotel Reservation:

Hotel TBD

Registration Form-(Click to view and print)

Speakers & Schedule

Future Information

This is the annual meeting in America for people who have an involvement with Stickler syndrome. Please contact us with any questions or special needs.

Stickler Involved People

15 Angelina
Augusta, KS 67010